Edit: I certainly don't mind sharing about our family's and son's struggle. Please don't feel bad that you brought up something bad or talking about it.
Unfortunately he passed away 2 years ago. We had an incredible supportive local community and few local organizations who's purpose was supporting local families.
I do highly recommend supporting St. Baldrick's http://www.stbaldricks.org/ for cancer research. Kids get the shaft in research money especially with only 1% from Cancer Society of America and 4% of the Federal Cancer Research Grants got o fight pediatric cancer. Any adult research is of little value to kids, but any findings with kids benefits adults in cancer treatment. So in 20+ years we have the first new chemo drug because of St Baldrick's research funded project paid off.