I think that OP raises a fair point, regardless of the downvotes.
Susan Komen, the Ice Bucket Challenge, and Movember raise a ton of money that could be used for more common and deadly diseases.
http://andrewgelman.com/wp-content/uploads/2014/08/hyU8ohq.j...
Yes, I'm happy that there has been an advance for ALS, but if you take a step back, it does appear that there may be a misattribution of limited research dollars.