The fact that this mother has to resort to soliciting via news if any other parent has a child suffering from the temporary paralysis condition instead of the doctors doing it proves that "the U.S. has the best medical system" is a farce.
You're going to have a hell of a time getting anyone to dedicate resources to this anywhere but likely a harder time a harder time getting resources dedicated to this in a market where treating a rare disease is not as lucrative. Whether it should be as lucrative as it is in the US is a different discussion. Of course she made a public appeal. It opens up the possibility of raising that number to more than 21 and if some pharma company has a stack of cash they want to burn on PR they can use that stack of cash to try and help make progress toward understanding this disease in a suitably visible way.
Does anyone actually try to claim that anymore? It's only "the best" if money is not a concern for you.