Really appreciate both of your stories. Any chance you could share the specific mutation? Such a difficult to understand condition given that both of you have one or more mutations in USH2A but have different stories around hearing loss

Photobiomodulation seems promising

PHOTOBIOMODULATION IN INHERITED RETINAL DEGENERATION (2012)

"A growing body of evidence indicates that exposure of tissue to low energy photon irradiation in the far-red to near-infrared (NIR) range of the spectrum, (photobiomodulation or PBM) acts on mitochondria-mediated signaling pathways to attenuate oxidative stress and prevent cell death. "

https://dc.uwm.edu/cgi/viewcontent.cgi?article=1007&context=...

I have no experience with it, just lots of reading during this downtime.