Are you sick? Because millions of sick people disagree with you. You can't read about our experience in a book and tell us how things actually work. You have to live it.
And if you work in healthcare, well, you only see the sick people who have the time and financial resources to navigate your tyrannical bureaucracy. And you won't see any sick people with an illness you don't understand, because we learn to stop wasting our time and money with you quickly.
"Doctors do this all the time—they get patients into drug trials, order in drugs from the medical systems of other countries, acquire new-old stock batches of drugs no longer produced, etc."
Maybe a small small percentage of doctors. Finding them and affording them is not something most sick people can do.