Hacker News Reader

Comment by moneywoes | Hacker News Reader

As someone who discovered their celiac disease late in life despite having onerous symptoms I wholeheartedly agree.

How long did it take for you to get rid of the symptoms completely (if ever)?

Asking cause similar case here, however, my symptoms have not gone completely despite being strictly GF for 2+ years now (my ttg iga levels are consistently below 4 units/ml).

Not the person you replied to, but took about 6 months for me the first time. After being "poisoned" by gluten a couple of times over the years, I tend to have symptoms for a month and then all gone within two. I am in the group who gets dermatitis rather than digestive symptoms though (though I also discovered in the process that onions give me the latter so I cut them out too!)

Maybe you should test if you have any other fodmap intolerance.

Monash University is doing a terrific job about it, and their 'Low FODMAP Diet' is the first approach working for me in almost a decade.

Yeah, just read about this recently. But man is following a low FODMAP diet hard!

Absolutely but the Monash app helps with the process, at least in my case.

I'm curious about what testing technology you trust. To diagnose celiac my doctor used TTG IGA values followed by an endoscopy to confirm villous atrophy.

I also recently got a Food intolerance IGG test and a LOT of things were marked red, however, I'm not sure I trust all food intolerance test technologies. Have to read up on this more before I start taking it super seriously (like I do with gluten).

You're right, not all food intolerance tests are the same. For example lactose intolerance tests are pretty accurate but fructose intolerance tests are not as reliable, and need more studies.

I got the full experience: endoscopy, colonoscopy, allergies (skin tests), celiac test, lactose test, fructose test, etc.

Reply on news.ycombinator.com