A similar story I saw a few months back on reddit is of Jacob Hendel, who also suffered from locked-in syndrome due to Acute Toxic Progressive Stage 4 Leukoencephalopathy.

He's got a website www.jhaendelrecovery.com and youtube https://www.youtube.com/c/JacobHaendelRecoveryChannel/.

It's super inspiring and he regularly provides updates on youtube on his recovery progress.