As in HCQ? Why (if you don’t mind talking about it)?
Unfortunately it drastically increases cranial pressure, anxiety. Can’t hold down a job on it.
So slow body destruction it is.
Still searching for a more creative provider to try steroids or biologics - Sjögren’s gets dismissed as manageable so easily, but I can’t help but see it the way you described. Progressive neuropathy and spasticity are terrifying.