>It fills her with dread when symptoms align with a possible ALS diagnosis. If she doesn't have a conclusion diagnosis she will sometimes not even suggest that something might be ALS because of the suicide risk.
This is a huge problem. Someone close to our family spent a lot of money to get a diagnosis because none of the doctors wanted to "go there". They ended up having to visit the MAYO Clinic for 2 weeks and spent a small fortune to find out, it hurt the family financially.