Hacker News Reader

This has basically nailed the stuff my wife developed “out of nowhere” toward the end of 2021.

Wow.

I wonder how one convinces doctors to take that seriously?

It’s been a real nightmare.

A coworker mentioned her partner was struggling with long covid. The wait time for a long covid specialist was long, and the eventual appointment yielded little.

Seeking a referral for the specific underlying symptom and abstaining from mentioning long covid finally resulted in better care it seems.

in the USA if you are near a research hospital or can get to one.. a person signing up for a support group might find themselves heading to eligibility for participating in a formal medical study.

My wife started to have many of the symptoms of long COVID starting around September of this year. No official diagnosis from her many doctors and specialists, just a constant barrage of co-pays and test after test after test. Some of her doctors say for certain it is not long COVID but they also say they do not know what it is... so... uh huh. Just have to keep on testing, and do the same test multiple times.

There isn’t really a diagnostic test for long covid. There’s been some interesting research and anecdotes around microclots and oxygen flow.

https://xdrx.substack.com/p/how-i-recovered-from-long-covid-...

Reply on news.ycombinator.com