It seems a bit ironic that the author spends a lot of the time lamenting her loss of his support for her creative process. Seems to me that given his (soon) impending loss of any capability to express anything at all, that the focus should be on whatever his wishes are -- whatever he wants to express or do in the short time he has left. Ie, his writing, his time, etc, and not hers.
Far too often, people do actually neglect the fact of the precious and irreplaceable opportunities they have among them -- such as rare and beautiful souls such as Jake. Very easy to take for granted the gifts we are given -- the people that provide. It sounds like she did so for 15 years, and of course, now that it is nearly lost, it is easy for her, now, to notice the notice the loss, and yet still call it her loss, rather than his.
How is it that even his dying, it is somehow still about her, and not about him, his wishes, creativity, wants, needs, desires, in his last days? Somehow, this is getting overlooked.