Funnily enough I was watching a vid yesterday on a potential breakthrough in another tricky illness - alzheimer's - where a researcher looking at passing on epigenetic information in nematode worms tried the same experiment in mice, knocking out a particular enzyme, and quite by chance produced alzheimer effects in the mice. Which now looks like it may have hit on the mechanism in humans. So maybe something like that? https://x.com/ydeigin/status/1828961739934695831
Everyone in my life disregarded me or didn't understand the severity of what I was dealing with. Looking back, returning to ADHD medicine back then might have been the best course of action, however a specialized treatment would be very welcome. Regardless of how others perceive the disease, people like me would greatly benefit.
Perhaps you can get a single attack of MS but not get (many) more. Certainly fatigue is one symptom of MS. Blurred / double vision is another.
Almost all of my friends had contracted it as young children, when the virus apparently is less destructive. Thus, my experience of mono at 18, and with a compromised immune system, was considerably more severe than anything experienced by those I spoke to.
I was unable to do anything but lay on someone's couch for 6 months. I was homeless and couldn't work due to the severity of the disease and risk of spreading it, and so I had to steal food in order to live. It's unsurprising that the aftermath was equally unpleasant.
The irony of warning not to take medical advice on HN, and then proceeding to offer alternative medical advice...
This, despite the fact that Doctors do actually prescribe stimulants for CFS.
Medical information couched as "I'm not an expert, here's my experience and some supporting references, your mileage may vary" tends to fly far better than doubling down on dissing opposing viewpoints or wildly novel and unsubstantiated information.
Dang's somewhat adjacent commentary: <https://news.ycombinator.com/item?id=20078667> (in the context of someone requesting that bad medical advice be flagged).
My view is that at best HN might raise potential treatments / practices which people should evaluate with a qualified medical professional. And yes, I'm aware that both access to and quality of same varies tremendously and can well be its own massive challenge. Particularly when capacity to seek out and engage with providers is itself limited.