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Comment by roelschroeven | Hacker News Reader

Dianna got better sometime last year as well, just in time to fly home to Hawaii for her father's funeral (yeah ...), but she got a lot worse again later. I really hope things will keep going well for Dianna now.

Props for her husband who's been incredible of taking care of her.

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This is the nature of ME/CFS (caused by Covid or otherwise), it does vary somewhat over time although the course is not always to improvement or around the same level but sometimes to death. She received some form of experimental treatments in order to gain the prior recovery which was at least a stellate ganglion block, she has not mentioned what else she may have received.

Hopefully she maintains a higher baseline from here on out and the production of these videos doesn't produce further Post Exertional Mailise that could worsen her condition.

>"Otherwise"

Would could this possibly be referring to?

Epstein-Barr virus (EBV), unknown genetic conditions or other unknown stressors.

Many different viral infections and other immune pressures can kick off ME/CFS. We don't yet know what otherwise actually means really, Epstein Bar Virus and Influenza but there is likely many others and only 70% of patients with the condition say it was initiated with an infection. Its a question well worth good research, there just isn't much in the way of funding for ME/CFS.

Man... I came here hoping to read she was fine now. Had no idea things got worse again :( I hope things get better for her.

At the moment, she appears to be progressing up. The user you are replying to was talking about a past up-swing followed by a down-swing. Hopefully there isn't a down-swing to follow this current up-swing.

Aww, I was excited to see her name pop up again, thought maybe she had recovered.

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