8,899 karma · joined September 5, 2009
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#117f7fThe lack of carbs is perhaps the worst for me. Even if I track then on the Dexcom app, it doesn't use them. The automatic boluses are often wrong. When I had it anywhere near my real ratio, it would 'predict' I was going over 160 and automatically dose me. So, say I was at 85, and had 15 grams of potato chips. My glucose would rise quickly and as it went over 125, 140, the system would predict it was going up past 160 - or who knows, since it doesn't know how many carbs I ate. So then it would dose me with say, 1.1 units, which was enough to take my glucose -back to 85-. That sent me in loops a couple of times... 85, eat, up to 145, automatic bolus, back to 85, eat, up to 145 - very annoying when it happened at night. I had to set my carb ratio so high that the automatic boluses are now insignificant amounts like .16 units. It also doesn't notify you on your phone about automatic boluses, which has caused me major problems when I'd also manually correct. The automatic basal reduction (Basal IQ) is useful though.
Anyhow, I'd love to try AAPS but I don't have an Android phone. I also used to follow someone on Twitter who was developing his own software that he said removed the need to pre-bolus at all. Not sure about the details though.
https://en.wikipedia.org/wiki/Reactive_hypoglycemia
It can occur for various reasons. Personally, I was developing adult onset type 1 (LADA) for a couple of years before I was diagnosed and I had all sorts of effects. While it was of course mainly effects of chronic hyperglycemia and shortage of insulin, I also had some episodes of hypoglycemia. Now that I’m on insulin, I’m very familiar with hypoglycemia resulting from an imbalance of exogenous insulin and carbohydrates. However, I looked back and realized this happened to me a few times before I was on insulin. I recall waking up a few times at night, sweating and shaking, and having a strong urge to consume food. I’d drink some juice or eat chips, feel better in 20-30 minutes and go back to sleep. This occurred after drinking alcohol, which makes sense as alcohol intensifies the effect of insulin and also prevents your body from releasing chemicals which raise your blood glucose level. I didn’t think much about it at the time but now I can see it was related to T1 onset.
My understanding is that essentially the body’s systems which regulate blood glucose are disrupted. This happens a with type 1 in general - not only problems with the system that produces and releases insulin to lower blood glucose by allowing it into cells, but also the part that does the opposite and release glucose to raise blood glucose levels. Sometimes the glucose-raising system doesn’t work at all while other times it’s inappropriately in overdrive. The same is true for the insulin releasing/glucose lowering system as it fails.