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lbhnact

234 karma · joined February 21, 2015

Data enthusiast trying to get medical data more standardized and interpretable. MD, MPH. dlevinbrown.com
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lbhnact··on Everyone is quitting
As a former student of Chinese history, this comment is right on target.

"Let a hundred schools of thought contend"

Ah, how history repeats itself.

lbhnact··on DeepHeart: A Neural Network for Predicting Cardiac Health
I've seen you post before and I think you guys are doing really interesting work.

[edit - noted attribution to wrong author, after a long day!]

lbhnact··on The Slave Who Stole the Confederate Codes and a Rebel Warship
Because they have the plaque? Charleston is all about it's history and was the epicenter of the slave trade, so I wasn't surprised to see it I suppose.

Reading it sure did send a shiver down my spine though. Looking out over the harbor, with the mansion estates of The Battery directly at your back, knowing all the chapters of so many lives that began and ended there, suffering to create the wealth that built them.

It's certainly not your average spot to process a sidewalk history plaque - I recommend a visit sometime.

lbhnact··on The Slave Who Stole the Confederate Codes and a Rebel Warship
Yeah, I was standing in Charleston Harbor reading the historical plaque about this guy a few years ago and had the same thought.

This is a movie I want to see made by a real director - it's an incredible story that deserves to be shared with the public.

lbhnact··on Hyperinflation in America: The End of Grades?
This is a bit off for most people that might actually be affected by the unemployment->insurance loss->need to get insurance asap problem.

About 30-40% of non-medicare America lives in non-expansion states, more if you include long-term resident undocumented (not just seasonal workers).

Medicaid is not available to 'unenemployed' people in most states in any sort of automatic way, so if you were employed in most middle class jobs, you won't qualify without serious tax shifting around the eligibility year enrollment cycle.

If you make under 133% of the federal poverty level in non-expansion states, you don't qualify for the exchanges.

Each non-expansion state's metrics for Medicaid qualification are slightly different. Unless you are under-18, a pregnant mother, or have ESRD, you probably don't qualify.

Also, to a different point above, COBRA is not 'discounted'. It temporary, but generally just as expensive as private insurance.

Kaiser Family Foundation is a great place for digestible data on US health care.

lbhnact··on Computer Crash Wipes Out Years of Air Force Investigation Records
Nice to see an encouraging response for 18F here. They are fighting the good fight, and most people don't even know what they are up against.
lbhnact··on Medical error is third biggest cause of death in the US, experts say
Just FYI, many hospitals other than JH were doing this long before JH.

JH is actually on the traditional/conservative end of the healthcare spectrum when it comes to process/algo/checklist style care, for better or for worse.

lbhnact··on Google AI has access to huge haul of NHS patient data
ResearchKit may be part of the solution for some things, although the auth and data management will be barriers for commercial providers for the near future.

I have a small team that is working with leaders in the space[1] to help many of the major EMR vendors support an open-standards based approach to medical record sharing.

We'll be seeking public feedback when some of the preliminary work is ready, but are very excited to get input from the community as we make progress.

[1] https://dbmi.hms.harvard.edu/news/more-power-patients

lbhnact··on NYC tech catching up to Silicon Valley, while Seattle flails
Carrboro: mini-Portland Chapel Hill: mini-Berkeley Durham: mini-Oakland Raleigh: mini-Atlanta
lbhnact··on Pharmacy Startup PillPack to Be Terminated by Express Scripts
I agree the non-negotiation was a major compromise. However it was, as I am told, basically required to get the ACA passed at all.

The drug companies were represented by Billy Tauzin [1] who, as I am told by insiders that worked directly with him, was able to get the Pharmacos to not fight the ACA. Their support was not just critical, but a necessary factor in getting anything done.

It was a trade-off, whether or not is was worth it is hard to know.

As for your own care, I am sorry to hear about the lack of insurance. Some states (for often historical market reasons) make it hard for providers to sell or even give medications to their patients, which is also part of this problem.

If you look around, there are occasionally 'Direct Primary Care' providers or community clinics that stock generics for their own patients and will provide them at no or low-cost. Many organizations and states have processes for the uninsured to obtain medications at low cost as well. If you find a clinic with PCPs who are mission-driven, and they are out there, they perhaps can help you enroll.

[1] https://en.wikipedia.org/wiki/Billy_Tauzin

lbhnact··on Pharmacy Startup PillPack to Be Terminated by Express Scripts
Apologies, it was an early morning...

I meant to point out the Express Scripts-Surescripts connection (and CVS, other pharmacy stakeholders...), which is part of why I think they may have dropped PillPack.

PillPack, and some of the other startups and smaller actors in the space, are potetial threats to the established players, like Express Scripts, that essentially collude through Surescripts to protect their access to the patient-provider origination channel.

It's the Surescripts network that has the near-monopoly on prescription EDI, and it acts to protect it's members interests. The tech is ancient and entrenched in a way that I imagine would greatly upset the HN crowd if they looked at it more closely.

Regulatory actors have not been paying enough attention here IMHO, and the nature of the market has led to an opaque situation that's prevented opportunities to advance research on important questions for social issues and patient care.

[1] http://surescripts.com/support/faqs/general/detail/who-owns-...

lbhnact··on Pharmacy Startup PillPack to Be Terminated by Express Scripts
Just chiming in here to help bring attention to the Express Scripts near-monopoly. Their market position and it's implications are surprisingly under-reported.

Surprised the HN crowd doesn't get more riled up about this, given the implications for science, opiate abuse, and other opportunities missed for improving the health system.

lbhnact··on The status of the biggest API in healthcare
Author here, would love to hear if anyone has been using FHIR in testing or production recently - thanks.
lbhnact··on Go Game Guru – Learn all about the board game Go
It's been a joy to watch all of the excitement around Lee Sedol and AlphaGo's incredible machine performance translate into increasing interest in Go, rather than a disappointed turn away from another domain that we seem to be preempted from. Maybe this speaks to something deeply encouraging about the definition of actual human intelligence.

It's sure makes me feel better about all the time I've spent playing Go during the workday these past few weeks, anyway.

lbhnact··on Fred Brooks retires
Had no idea till now, three days late. How surreal is the modern web that I find out about this via SV-funded HN, rather than organically in the town that I am currently in, coming from a meeting on the campus of which I just met to discuss plans for future of health computing, from my own campus student newspaper where I worked and where I first heard of and met Fred Brooks.
lbhnact··on Virginia Tech Professor Spent $147k to Help Uncover the Flint Water Scandal
Well, speaking as someone who has actually enforced the Clean Water Act while in service to the public as an officer in the Coast Guard, and having traveled the globe with an eye for maritime commerce and water quality as a whitewater enthusiast, I can say that the United States does a good job compared to most of the rest of the world.

'Shared infrastructure in the hands of the public' means government or regulated monopoly.

The local government, with greater pressure from local industry failed in this case, which in my reading, is an argument for greater federal control.

What other way to implement the granting of a special privilege, oversight and judgment, is there for something like water quality? Yelp?

lbhnact··on How the McLaren F1 Got Its Sound
Here we go: https://www.youtube.com/watch?v=rRNoRlLlsD8

Hadn't heard of that engine before. Was a very pleasant way to take a break from emails. Thanks.

lbhnact··on Loss aversion is not what we think it is
I like the phrase 'utility hysteresis'.

I would say that, at least academically, the difference between 'diminishing marginal utility' and 'loss aversion' is appreciated. To quote course material, 'When directly compared against each other, losses loom larger than gains'.

The difference in perception on the gain and loss side has been tested some, and the curve is supposed to look like this: https://goo.gl/PS8Z7c

lbhnact··on My adventures in medical tourism
Thanks for saying this is more friendly terms that I did.

What's also interesting, is that the US is likely a large net 'exporter' of medical tourism. I currently work with hospitals that are rapidly developing large businesses in medical tourism, because for all our needless systemic problems, people trust that, if you have the cash, you can find a good doctor.

lbhnact··on My adventures in medical tourism
Imagine how much a hassle car repairs would be if cars were a staggeringly complex biological system where parts could not be replaced figuring out what was wrong was difficult and all work had to be done in while it was driving down the road and it was really easy for you to die if a mistake was made and other people had to pay for it.
lbhnact··on My adventures in medical tourism
>I still can't believe that you can not call up a doctor/clinic/hospital in US and get a price quote for something routine

You can. Routine, profitable procedures are not hard to arrange in the US. I have personally worked in a clinic where the exact experience described in this post happens every day.

>If you are a working, middle class person, the free market health care works extremely well.

It's pretty easy in most places in the world to get people to do something that makes them money, like the discectomy discussed here.

Managing a system where the poor and the unlucky get care is a little tougher. The US does it lousily, but so does most of the rest of the world. India doesn't do it at all.

edit:copy error

lbhnact··on What’s Really Killing Digital Health Startups
So, I could actually show you the emails where I helped move JSON from a MAY implement (with XML as a SHALL), to it being a proper first class member of the spec. The FHIR core team was and continues to be interested in feedback from experienced integrators. I read your comments here occasionally; you're smart, participate!

You use the phrase 'lingua franca' which provides and interesting analogy - it was implemented globally by a group of imperialists who controlled the trade transshipment points of a big chunk of the world by force of arms; is there a corollary in health care?

Actors on the web that have a profit motive to play together have adopted a set of norms (REST, JSON) to manage tasks that are usually trivial compared to medical knowledge representation. We still can't get an iCal right, for goodness' sake. Everyone else is buttoned up, and FB and GOOG don't exactly share network data with each other.

Regarding point four: if it get's specific to times, then you do have to indicate time zone, just ate the dateTime level: "If hours and minutes are specified, a time zone SHALL be populated." (https://www.hl7.org/fhir/datatypes.html#dateTime)

lbhnact··on What’s Really Killing Digital Health Startups
Happy to hear specific issues! https://chats.fhir.me/feeds/skype/implementers.html - best place to participate if you want to help. Even at v1.0, many people are open to changes that reflect the needs of strong cases.

There are compromises in any API, and FHIR does a decent job of making common needs things simple, the alterative would be some RIM or graph based model that you'd have to get graduate degree in before you could say 'just GET me a Potassium result dammit'.

Please reach out if you see ways the spec could improve.

lbhnact··on What’s Really Killing Digital Health Startups
Exactly. Vista has pretty lousy UX, but it's implementation across most of the VA it a central part of the VA's much greater efficiency that other systems with similar populations.

Of course, being written in MUMPS (just like some of the other biggies) doesn't help, but the failure of Vista to be implemented commercially has to do with market and human reasons that could have been engineered around. Missed opportunity for the US, really.

lbhnact··on What’s Really Killing Digital Health Startups
FHIR is probably the best hope that we've got. I am biased of course, but I've bet a few years of my life on it. :)

Happy to help anyone learn more about the spec @medhacker

[1] http://www.annemergmed.com/article/S0196-0644(15)00226-7/ful...

lbhnact··on CS Unplugged: Computer Science Without a Computer
I would be careful here - when I studied organic and physical chemistry, I was very surprised to discover how much of the discipline was empiric. X + Y + heat = Z. Why? Mmmm, ask a physicist.
lbhnact··on Ask HN: Would you give me a food and shelter if i code for you?
Hi there. I work in an environment where I can probably show people your resume and help you get exposure to opportunity. Feel free to contact me at the corporate domain in my profile. Good luck.
lbhnact··on How many lives does a doctor save?
This. That IOM report has been one of the most misused pieces of science of all time.

NNT, RR, basic statistical perspective. People are so often bad at understanding (or even acknowledging) the counterfactual.

lbhnact··on Ask HN: Working within constraints of hospital IT?
A number of companies are hosted on Aptible that are not only in production, but doing well. The same goes for Catalyze.

In general, though, yes, whether or not the solutions will suffice comes down to the arbitrary decision of an administrator who probably doesn't understand the underlying tech issues. That will start changing soon though.

lbhnact··on Ask HN: Working within constraints of hospital IT?
We provide API integration solutions along the lines of other companies. We have not been around as long as Catalyze (which does a very good job) but are experts in FHIR, and have an infrastructure that may be more multi-party friendly.

We have a pretty cool multi-tenant database solution that hospital parties could pool data into with highly granular authentication, access control, and auditability at both the db and API levels. No one else offers this yet, but it also may be more robust than the hospitals understand enough to care about.

Happy to discuss if you are interested at the commercial site listed in my profile. Also happy just to share our experiences in similar situations, or make recommendations for other more simple solutions on your own stack. Good luck!

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