Maybe a possible option is trying to find someone who faces a similar catch-22 situation to date too?
(But this could end up being doubly difficult for both the people too... don't really have a good perspective on this.)
(But this could end up being doubly difficult for both the people too... don't really have a good perspective on this.)
If the Chordoma Foundation or someone else could yield a breakthrough in treatment -- a real possibility -- my whole situation changes. For me, possibly more than for most people, this makes my argument stronger. They've been in operation for three years and already a lot has been learned. (More than in the past 20 years!) Consequently, I think the equation reduces to me getting to the bad point in sickness within three-to-five years, or them getting successful before then.
(Ignoring the very high probability of recurrence, I am perfectly healthy and have been since my surgery five years ago. Considering the median time to recurrence is 9-12 months and median survival time is 6 years, I am in a favorable and lucky bracket.)