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I understand where you’re coming from but, while pain is always present, it follows a pattern of flare-ups which aren’t easy to predict.

For example, I had a splitting migraine for 63 days straight, starting the day after Christmas this year. It took my neurologist designing a migraine-breaking drug cocktail to break it.

Backend web-centric, leadership, plus other misc things I learned as a founder. Can you drop me a message? I can imagine a chronic pain startup being a place that would understand the needs of a chronic pain patient.

tyvm for the shrimp at gmail dot com

I am not in any way offended by this. I agree 100%. It was a mistake not to have disability insurance.

Everyone (in America at least) should make sure they have LTD coverage of some sort if they can. The public benefits options just aren’t there. This was a mistake I made.

My co-pays for meds and visits are about 1/3 of my budget.

First: I have become an evangelist for disability insurance. I know it sucks but total award amounts seem to be higher and more sustainable.

LA would be hard, I feel for you.

Any suggestion on advocacy programs? I am in the Midwest if that helps.

I know that this depends on specific impairments, but have you found ways to do things you enjoy? This is the hardest thing for me right now: I don’t want to spend the rest of my life watching TV.

Fibromyalgia and CFS have been tossed around but never officially diagnosed.

The practical experience that I have is frequent exhaustion from things that should be easy, difficulty focusing, flu-like aches and tons of migraines.